It’s called the National Vasculitis Access Survey for vasculitis patients who access vasculitis care within the Canadian healthcare system, and for Canadian participants only. Researchers want to find out about any issues people have with getting the care they need for their vasculitis condition.  This includes finding out what things may affect their health (like: how long it took to reach a diagnosis, who diagnosed you, the number of visits to emergency, hospital stays, drug coverage/plans, housing, food insecurity, ability to travel etc.).

Online patient surveys have proved to be a new and very effective tool to quickly get your feedback on issues that are important to vasculitis patients.  Now we need your help with a new survey that hopes to identify more issues, on a deeper level, that impact vasculitis patients like you.

On behalf of Dr. Elaine Yacyshyn and her research team in the Faculty of Medicine at the University of Alberta I encourage all vasculitis patients over the age of 18 to complete this new and anonymous online survey. 

Here are some important details about this new survey and study.

Title of the study:  National Vasculitis Access Survey

Purpose of the study: Researchers want to find out about any issues people have with getting the care they need for their vasculitis condition.  This includes finding out what things may affect their health (like: how long it took to reach a diagnosis, who diagnosed you, the number of visits to emergency, hospital stays, drug coverage/plans, housing, food insecurity, ability to travel etc.), and your ability to access healthcare.  What you tell us will help researchers become aware of what needs to be improved in your vasculitis care to better meet your needs and the needs of others.

Who should be a part of this study: We are looking for participants who are over the age of 18 who have been diagnosed with vasculitis.  This survey, and study, is for vasculitis patients who access vasculitis care within the Canadian healthcare system, and for Canadian participants only.

How to be a part of the study: If you wish to be a part of this study, please complete the online survey by clicking on the link below. The survey should take you about 30 minutes to complete. You do not have to answer any questions that you do not want to answer.

Your privacy: The information that you will share will remain completely private and will be used only for the purpose of this study. You will not be asked for your name or contact information.

More information: A complete information letter about the study is also available for download on the first page of the survey itself.  If you have any questions, you may contact the researchers at (780) 492-8789.

Ethics Approval:  This study has been ethics approved by the University of Alberta, reference Ethics ID: Pro00122345

To complete this important survey Follow This Link: https://redcap.ualberta.ca/surveys/?s=9TXHWF89PPMHRNA7

On behalf of the VFC board, we encourage all of you to participate in this important new survey.