Vasculitis Foundation Canada is encouraging GCA patients to participate in a new
study. This study is interested in your GCA experiences and knowledge to understand
which aspects of GCA are important to patients. Your responses will help in the
Development of EULAR/ACR Response Criteria for Giant Cell Arteritis. EULAR is the
European Alliance of Associations for Rheumatology and ACR is the American College
of Rheumatology.

Participation in this study involves completing an online survey, lasting three rounds
over six months. Although you are asked to enter your name and e-mail address at the
beginning of the survey (so as to keep track of who answers the survey), all your
answers are completely confidential, and your responses will not be matched to your
name. Each round should take no longer than 15-20 minutes to complete. Participation
in this study is voluntary, and you may stop your participation at any time.
You will be asked to return each ‘round’ of the survey within 1-2 weeks of receipt. This is
so we can incorporate your answers into the next ‘round’, and to include you in the next
‘round’.

For more information about the consent process, click on the following link:
https://external.redcap.uhn.ca/surveys/?s=X7MYJLFWMHE8K8CM

If you would like further information or if you have any questions about participating,
please contact Dennisse Bonilla, Research Coordinator at the University Health
Network in Toronto, at 416-603-5800 ext. 3559 and [email protected] or Dr.
Zahi Touma at 416-603-5800 ext. 5248.

Please note that communication via e-mail is not absolutely secure. Thus, please do not
communicate personal sensitive information via e-mail.

Thank you for considering participation in this study.