{"id":879,"date":"2021-01-14T18:31:16","date_gmt":"2021-01-14T22:31:16","guid":{"rendered":"https:\/\/vasculitis.ca\/?p=879"},"modified":"2021-01-15T12:11:36","modified_gmt":"2021-01-15T16:11:36","slug":"gpa-and-mpa-patients-are-wanted-for-an-important-research-survey","status":"publish","type":"post","link":"https:\/\/vasculitis.ca\/?p=879","title":{"rendered":"GPA and MPA patients are wanted for an important research survey!"},"content":{"rendered":"<p><span style=\"color: #ff0000;\">Even though the PEXIVAS study stopped recruiting GPA and MPA patients a couple of years ago there are still things that continue to be learned from the study, and there are new questions that have arisen as a result of that important study. For example, researchers now want to learn more about how GPA and MPA patients weigh specific pros and cons of treatment options\u00a0that include plasma exchange.<\/span><\/p>\n<p><span lang=\"en-US\">The <\/span><span lang=\"en-US\">OPTIONS Vasculitis<\/span><span lang=\"en-US\"> survey (or <\/span><span lang=\"en-US\">O<\/span><span lang=\"en-US\">ptions and <\/span><span lang=\"en-US\">P<\/span><span lang=\"en-US\">references for <\/span><span lang=\"en-US\">T<\/span><span lang=\"en-US\">reatments <\/span><span lang=\"en-US\">informing recommendations<\/span> <span lang=\"en-US\">S<\/span><span lang=\"en-US\">tudy in <\/span><span lang=\"en-US\">Vasculitis ), <\/span><span lang=\"en-US\">is focused on finding out how patients with GPA and MPA feel about the treatments they may be offered. <\/span><strong><span lang=\"en-US\">OPTIONS Vasculitis<\/span><\/strong><span lang=\"en-US\"> is being organized by researchers and patients from Canada, Switzerland, the U.K., and the U.S.<\/span><\/p>\n<p style=\"text-align: center;\"><img fetchpriority=\"high\" decoding=\"async\" class=\"alignright size-full wp-image-883\" src=\"https:\/\/vasculitis.ca\/wp-content\/uploads\/2021\/01\/patient-GPA-MPA.gif\" alt=\"\" width=\"300\" height=\"246\" \/><\/p>\n<h4 align=\"CENTER\">If you are a GPA, or MPA, patient, please complete a survey about\u00a0<span style=\"color: #ff0000;\">plasma exchange for the treatment of <\/span><span style=\"color: #ff0000;\">ANCA\u00a0 associated vasculitis<\/span>\u00a0and\u00a0<span style=\"color: #ff0000;\">kidney disease!<\/span><\/h4>\n<p align=\"CENTER\">This study seeks to understand\u00a0how patients\u00a0with ANCA associated vasculitis and kidney disease\u00a0view the\u00a0benefits and harms of plasma exchange.<\/p>\n<p align=\"CENTER\"><img decoding=\"async\" class=\"size-full wp-image-881 alignnone\" src=\"https:\/\/vasculitis.ca\/wp-content\/uploads\/2021\/01\/survey.gif\" alt=\"survey\" width=\"300\" height=\"168\" \/><\/p>\n<p style=\"text-align: left;\" align=\"CENTER\">The survey is designed to:<\/p>\n<ul>\n<li>Collect information on how patients view the trade-off between a lower risk of dialysis but a higher risk of serious infection with plasma exchange<\/li>\n<li>Participation is anonymous, and all responses are confidential<\/li>\n<li>The survey will take approximately 15 minutes to complete<\/li>\n<li>This study will inform shared decision making and clinical practice guidelines<\/li>\n<li>The survey is located here: <a href=\"https:\/\/www.surveymonkey.com\/r\/optionsvasculitis\">https:\/\/www.surveymonkey.com\/r\/optionsvasculitis<\/a>\u00a0<\/li>\n<\/ul>\n<p><span lang=\"en-US\">Thank you for considering to participate in this survey!<\/span><\/p>\n<p><img decoding=\"async\" class=\"size-full wp-image-882 aligncenter\" src=\"https:\/\/vasculitis.ca\/wp-content\/uploads\/2021\/01\/vasculitis-logos.gif\" alt=\"\" width=\"841\" height=\"104\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Even though the PEXIVAS study stopped recruiting GPA and MPA [&hellip;]<\/p>\n","protected":false},"author":2059,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[],"class_list":["post-879","post","type-post","status-publish","format-standard","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/879","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/users\/2059"}],"replies":[{"embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=879"}],"version-history":[{"count":2,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/879\/revisions"}],"predecessor-version":[{"id":885,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/879\/revisions\/885"}],"wp:attachment":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=879"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=879"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=879"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}