{"id":1608,"date":"2022-05-06T15:59:00","date_gmt":"2022-05-06T19:59:00","guid":{"rendered":"https:\/\/vasculitis.ca\/?p=1608"},"modified":"2022-05-06T15:59:00","modified_gmt":"2022-05-06T19:59:00","slug":"vfc-needs-your-help-with-a-short-anonymous-survey-to-better-understand-the-needs-of-vasculitis-patients-when-it-comes-to-their-experience-with-prednisone-and-a-newly-approved-drug-called-avacopan-tavn","status":"publish","type":"post","link":"https:\/\/vasculitis.ca\/?p=1608","title":{"rendered":"VFC needs your help with a short anonymous survey to better understand the needs of vasculitis patients when it comes to their experience with Prednisone and a newly approved drug called Avacopan\/Tavneos."},"content":{"rendered":"<p><strong>Many vasculitis patients will be interested to complete this survey because it asks for your feedback on prednisone,<\/strong>\u00a0and a newer drug called\u00a0<strong>Avacopan (Tavneos)<\/strong>. \u00a0Some of you may know that Avacopan (Tavneos), was very recently approved by Health Canada, and is already FDA approved. In certain vasculitis settings Avacopan (Tavneos), has been approved as a partial, or even a complete, replacement for prednisone.<\/p>\n<p>The survey questions have been developed with input and review from a number of patients as well as Dr. Pagnoux, from the Toronto Vasculitis Clinic, and Dr. Velma Mockett who is speaking at our 2022 AGM.<\/p>\n<p><strong>The survey results\u00a0<\/strong>will be reviewed by Dr. Pagnoux, and <strong>will help VFC complete the patient submission for CADTH<\/strong>\u00a0(Canada\u2019s Drug and Health Technology Agency at: <a href=\"https:\/\/www.cadth.ca\/about-cadth\" target=\"_blank\" rel=\"noopener\">https:\/\/www.cadth.ca\/about-cadth<\/a>, and is part the drug assessment process in Canada&#8230; that I have mentioned from time to time! CADTH seeks patient perspectives to improve the quality of their assessments of medical procedures, devices, and drugs. \u00a0CADTH\u2019s recommendations <strong>on publicly funded\u00a0procedures, devices and drugs impact Canadian patients. We hope your responses will translate into improved drug access for\u00a0patients like you!<\/strong><\/p>\n<p>If you have not already completed the survey, <strong>only once per patient<\/strong>, please take this anonymous 5-10 minute <strong>survey to help us understand your vasculitis experience and needs<\/strong>.<\/p>\n<p><strong>Follow this link to take the survey:<\/strong><\/p>\n<p><a href=\"https:\/\/forms.gle\/o1PzA6TUa3ebwZ927\" target=\"_blank\" rel=\"noopener\"><strong>https:\/\/forms.gle\/o1PzA6TUa3ebwZ927<\/strong><\/a><\/p>\n<p>As most of you know, <strong>patient education<\/strong>, and patient engagement in their vasculitis, <strong>has been a strong belief of VFC for many, many years!<\/strong> So, please complete this survey asap, and<strong> feel free to share it amongst your fellow vasculitis patients!<\/strong><\/p>\n<p>On behalf of the VFC Board,\u00a0<strong>we hope you will set aside 5-10 minutes of your time to complete the above survey<\/strong>, and thank you for considering to participate in this survey.<\/p>\n<p>ps: Save this date! <strong>Saturday, May 14, 2022 at 12 Noon ET for the VFC AGM\u00a0via ZOOM. Join guest speakers Dr\u2019s.: Velma Mockett and Stephanie Garner for presentations on coping with vasculitis and COVID, as well as a vasculitis update and current thinking on vasculitis and COVID<\/strong>. Send an email to <a href=\"mailto:contact@vasculitis.ca\">contact@vasculitis.ca<\/a> to join.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Many vasculitis patients will be interested to complete this survey [&hellip;]<\/p>\n","protected":false},"author":2059,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[],"class_list":["post-1608","post","type-post","status-publish","format-standard","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/1608","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/users\/2059"}],"replies":[{"embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1608"}],"version-history":[{"count":1,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/1608\/revisions"}],"predecessor-version":[{"id":1609,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/1608\/revisions\/1609"}],"wp:attachment":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1608"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1608"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1608"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}