{"id":1530,"date":"2021-07-29T14:00:46","date_gmt":"2021-07-29T18:00:46","guid":{"rendered":"https:\/\/vasculitis.ca\/?p=1530"},"modified":"2021-07-29T16:02:35","modified_gmt":"2021-07-29T20:02:35","slug":"vfc-completes-a-major-update-to-our-website-with-a-complete-package-of-patient-education-resources-and-patient-tools-for-each-of-10-vasculitic-diseases","status":"publish","type":"post","link":"https:\/\/vasculitis.ca\/?p=1530","title":{"rendered":"VFC completes a major update to our website with a complete package of patient education resources, and patient tools, for each of 10 vasculitic diseases"},"content":{"rendered":"<h3 class=\"western\"><span style=\"color: #ff0000;\"><span style=\"font-family: Helvetica, serif;\"><span style=\"font-size: medium;\">With lots of patient input, Dr. Joanne Jiang has produced this new content that we hope will improve patient understanding of their vasculitis disease, and improve vasculitis outcomes for patients like you<\/span><\/span><\/span><\/h3>\n<p>Patient education, and patient engagement in their vasculitis, has been a core belief of VFC since our very beginnings, so <strong>we are thrilled to take our patient resources and tools to the next level<\/strong>.<\/p>\n<p>Earlier this year VFC co-sponsored\u00a0<strong>Dr. Joanne Jiang as a VFC Vasculitis Fellow\u00a0<\/strong>at the Toronto Vasculitis Clinic with Dr. Pagnoux. <strong>Part of Dr. Jiang\u2019s studies was to develop self-management patient \u201ctools\u201d and \u201cresources\u201d<\/strong>\u00a0that will assist vasculitis patients to better understand, and manage and track, their vasculitis journey. <strong>The ultimate goal is that these \u201ctools\u201d will translate into improved disease outcomes for patients.<\/strong><\/p>\n<p>Vasculitis patients can be overwhelmed with a vasculitis diagnosis. Working together with Dr. Jiang, CanVasc (www.canvasc.com), and lots of patient input, we proved the need for improved educational materials, and patient management tools. It is our hope that <strong>these\u00a0\u201ctools\u201d\u00a0will help patients navigate the \u201cnew world\u201d of powerful treatments, regular lab tests, biopsies and ongoing doctor appointments etc<\/strong>. We want every patient to \u201ccome-up-to-speed\u201d quickly on their vasculitis, to better understand their\u00a0symptoms, diagnosis, treatment, lab tests and learn how to track those results.<\/p>\n<p><strong>VFC sends a special \u201cshout out\u201d to all those who participated in the \u201cpatient needs survey\u201d as well as those who proofed various draft versions. <span style=\"color: #ff0000;\">Check out the final documents sorted into 10 vasculitis diseases at this link: <a style=\"color: #ff0000;\" href=\"https:\/\/vasculitis.ca\/?page_id=68\">https:\/\/vasculitis.ca\/?page_id=68<\/a><\/span><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>With lots of patient input, Dr. Joanne Jiang has produced [&hellip;]<\/p>\n","protected":false},"author":2059,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[],"class_list":["post-1530","post","type-post","status-publish","format-standard","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/1530","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/users\/2059"}],"replies":[{"embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1530"}],"version-history":[{"count":1,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/1530\/revisions"}],"predecessor-version":[{"id":1531,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=\/wp\/v2\/posts\/1530\/revisions\/1531"}],"wp:attachment":[{"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1530"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1530"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/vasculitis.ca\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1530"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}